Lynda’s Funeral

Shortly after Lynda died on Thursday the 6th of July, a major thunderstorm rolled in that rocked Auckland for the rest of the day. As her son-in-law Joseph was tucking his kids in that night, both frightened by the storm, he muttered “Move along Lynda, please!”. But it rained heavily for days.

Monday, however, was a glorious sunny winters day. The funeral at Landsendt in Oratia was beautiful, the speeches were fantastic, and the weather held for the most part.

It was a fitting send off for Lynda. She would have loved it.

If anyone has any other nice photos, please email them through to me and I’ll add them below.

And please, feel free to add a comment to the board below – whether you were there or not.

The wreath made from foliage from McEntee Road, with a message from each grandchild

The Grandkids

 

 




Memorial articles to Lynda

There have been some lovely memorial articles in the two main national news sites.

The New Zealand Herald
http://www.nzherald.co.nz/health/news/article.cfm?c_id=204&objectid=11888109

Stuff.co.nz
https://www.stuff.co.nz/national/94482971/womens-health-activist-lynda-williams-dies-of-cancer

And she was mentioned on the 9pm news on the National Program on Friday 7th of July (skip forward to 3m 40s)
http://www.radionz.co.nz/audio/player?audio_id=201850360

NZ Doctor
https://www.nzdoctor.co.nz/news/2017/july-2017/10/health-campaigner-lynda-williams-dies-18-months-after-cancer-diagnosis.aspx




Lynda 11-03-1950 to 06-07-2017

Mum died at 1:24pm today at home surrounded by all her 5 children.

A celebration of her life will be held @ 1pm on Monday 10th of July, at Landsendt, 108 Parker Road, Oratia.

All are welcome. Bangles may be worn.

UPDATE:
The venue at Landsendt is outdoors, so please dress warmly.




Lynda at home

It’s eldest son Luke here with an update on Mum’s condition.

It has now been 2 weeks since Mum left the hospice and came home. The hospice staff did a great job in sorting out her meds, so she has been pain free for the past few weeks. While she is fairly comfortable in her new downstairs bedroom with heat-pump and fancy pneumatic bed, unfortunately her appetite has not returned.

Her support team realised that round the clock care is now required, so we’ve been ensuring there is someone here at all times. And in the past few days we’ve also enlisted a professional carer (carefully selected by Mum) to help out.

Mum has had some really great days over the past few weeks, particularly last Thursday when she had Ruth, Betsy and Barbara here reminiscing over old times. It was a clear winters day, and her new bedroom was bathed in morning sunshine while she was surrounded by friends, family, conversations and birdsong. It is clear she is still able to have a high quality of life at the end, thanks to her wonderful network of friends & family.

 




The Inaugural Lecture

On 21 June my friend Robin drove me into the medial legal unit to attend Professor Jo Manning’s Inaugural lecture on “Compensation for research-related injury in the UK, Australia and New Zealand: a legal and ethical audit”. Leading bioethicists, national commissions, and leaders of the medical profession around the world have argued that society owes an ethical obligation to compensate for research-related injury, and that no-fault compensation is the best ethical response.

My friend Betsy snapped a picture of me, my ex-husband Bill, and Professor Jo Manning after the event.

UPDATE FROM LUKE:
I received a lovely email update from Robin, Betsy and Dad on how the evening went. There were few details worth mentioning that Mum left out:

From Bill:

Jo Manning is a member of the Cartwright Collective, and made a very nice acknowledgement of Lynda’s work at the start of her lecture (which marked her inauguration as a professor at the law school). In fact it was Lynda’s observations that triggered Jo’s research on compensation for patients adversely affected in clinical trials, which was the subject of her lecture

From Robin:

Jo came to Lynda immediately after her presentation and told Lynda that if/when she/they are successful in getting the law changed in NZ so that ” no fault” compensation is, in the future, awarded to all those who suffer the misfortune of injury by reason of medical trials, the new law will be called, “Lynda’s Law”. Then she added, “and I mean that”, and gave Lynda a long hug.

For me that was a moment I feel so lucky to have witnessed. I feel glad and privileged to have been able to play a small part in helping last night go smoothly and I am very proud of being able to call you my friend for 42 years of my life, Lynda.
You are a magnificent woman. You have made a difference in your life – to young families and their successful birthing and nurturing of their babies, to every area of women’s health, as National Women’s Hospital advocate to assist the communications and successful outcomes for hospitalised patients and now, in what is perhaps your finest moment, an advance that will potentially progress positive and fairer outcomes in the future for all NZers who offer themselves for trial in the process of advancing medical science and consequently producing healthier outcomes for all NZers.

This was a wonderful culmination of your career, Lynda.

Arohanui, my dear friend

Thanks very much for passing these comments on – and giving me permission to put them on the blog. The family was very touched to hear this 🙂

 




A week in hospice

Last Monday I was admitted to the West Auckland hospice in order to get the nausea and pain medication sorted out. It was so much quicker doing it in hospice. By the end of the week we were making plans for my discharge back home which occurred very smoothly. Over the previous few days my children had drawn up a spreadsheet sheet for family and friends who wanted to be on the care roster. The hospice staff were very impressed with how it all went and asked to have a copy of it as a guide for others. My first night at home went well and I quickly adapted to all the bird songs that surround me first thing in the morning and last thing at night.

Looking back, I think it would have been best to come in to the hospice earlier than I did, but I am inclined to be rather stubborn and this was another example of my being stubborn rather than sensible.

And this week I have a very important event on my calendar – an Inaugural Lecture to attend which I am very much looking forward to.

bty